Well I hope that everyone had a good Thanksgiving. Ours was really nice. We went to Jeremy's Grandparents for dinner. Kai was so funny..Grandma Brady sat next to him and next thing we knew he was eating her cucumbers. Obviously he is not shy at all.

Unfortunately in the past few weeks Kai has continued to go downhill. He can no longer get in the tub by himself and is having a harder time negotiating stairs. I spoke to his therapist about this yesterday and he is very concerned. He said he has seen declines before but this is a sharp drop off. So he wants us to wait to bring him back until after we get home from Philadelphia. He also noticed that Kai's disease is not like other muscular dystrophy's. In most cases the muscles look really bulky, however with Kai this is not the case. His seem to be wasting as he grows. Hopefully Dr. Bonnemann can provide some needed insight into why this is happening so quickly.

On a lighter note, it is Christmas time!! Yea!! Kai is very excited for Santa to come. I love this time of year, because no matter what is going on in our lives I have something positive to focus on. I love seeing my children's faces on Christmas morning, pure joy! I hope that despite what is going on in our world everyone can recognize the blessings in their lives.