I can't believe it has already been three weeks since my last post. Obviously a lot of things have happened, some good, some not so good. I will start with the good stuff first. Kai started preschool on the 18th and loves it. I think for the first time in awhile he feels normal. I think that has been the hardest thing for me is seeing him realize that he is different. He also was able to start physical therapy again. Unfortunately his hamstrings have tightened and he has lost some range of motion. This is really what we want to avoid in order to keep him out of a wheelchair as long as possible.
Today Ainsley was talking about Kai dying. It stinks having a daughter who is so smart and in tune with her parents feelings. I never know how to respond because I don't want to scare her or blow her off. I'm sure that when people look at him they think he will be just fine. However, this is not the case. He will not live to be an old man and it breaks my heart. Well enough depressing stuff for today. Until next time.

A Great Day!

I apologize to everyone for taking so long to update the blog. It seems we are still recovering from Saturday. Everything turned out really well. It seemed that those who attended enjoyed themselves. The person who seemed to have the most fun was Kai, which is how it should be. Every time I saw him he had a different flavor of snow cone. Granted most of them ended up down the front of his shirt. lol
I will be posting pictures from the event later. Thanks again for every one's love, help, and concern. We couldn't make it through without you.