I am going to try and be better about updating at least on a weekly basis. This week has been pretty uneventful. The only thing is on Thursday Kai woke up with a cough. Over the past few days he seems to have gotten a little worse. I can tell he is not feeling well because he sooo cranky! Hopefully by taking tomorrow off from school and other activities he can recover quickly.
Any time Kai gets a respiratory bug my anxiety goes through the roof. Because of his muscle weakness he can't produce a productive cough and so he is at risk for pneumonia. We felt very blessed that he only got it once last year and didn't have to be hospitalized. I hope and pray that this year goes as well as last, if not better.

It has been a very eventful week or so. Batman's I mean Kai's Grandma Mike came from Wisconsin for a visit. We all loved having her here for Halloween. Kai insisted on being Batman like his best friend Shane. They are two peas in a pod.
Halloween at the Wynkoop's this year was a little different than those in the past. The trick or treat bags were not very full because Kai only made it to maybe six houses, and these were ones without stairs. His stamina is just not what it used to be unfortunately. On the other hand our dentist is probably thrilled! However, I think we all still had a great time. After all Daddy was home!!
On Monday this week I took Kai to physical therapy. It continues to be a depressing event. Kelly, Kai's therapist, commented on how weak he is becoming. He is falling more frequently, especially as he get more tired. Kelly told us it is critical to keep him active this winter.
On Wednesday we took him for his six month follow up with his pediatrician. At these visits we go over his care plan and adjust his medications as needed. The positive thing that came from this is we were able to knock out one of his prescriptions he hasn't needed for awhile. So now he only has to take his Neurontin (for pain at night), Naprosyn (more pain meds), and Prevacid (for his reflux), each night at bedtime. On really bad days he may have to take an additional two medications, Tylenol w/codeine (for really bad pain), and Atarax (for his itchies as he calls them). Yes we keep our pharmacy in business! As you can see Kai has been a busy boy. As long as we can keep him from catching any nasty respiratory bugs we should not have any doctor visits and only have one PT visit before we head to Philly January 8th.
Well that's enough for now, until next time.


This picture is just too cute not to share.

Kai(Batman) and sister Ainsley(some sort of princess).