Kai Kai update

A lot has happened over the past few months so here is the 60 second version. After a sleep study it was determined that Kai Kai needed to be on oxygen at night. This has made an impact on his energy and we are greatful to the doctors for making such a simple suggestion. Also, last week we were able to visit Shriners Hospital to have Kai Kai measured for his first wheelchair. The hope is that it will free him up at school so that he can have better days without being so wiped out. It is difficult for Jessica and I to swallow that he is progressing in this manner, but we do know that we are blessed and that Kai Kai is being watched over. The charity is something that we have hoped to do for a long time and look forward to being able to have an impact on those children who are struggling with rare neuromuscular disease. 2011 will be a year of change and we hope that all of you will join us in our journey!