About Us

I know that many of you who read this blog may not know our family. So to start off here is a little background. Jeremy and I (Jessica) were married October 12, 2000. Ten months and two days later along came Ainsley Mae a beautiful blue eyed baby girl. She is getting ready to turn seven and loves everything that comes along with being the big sister. June 22, 2003 Daniel Peyton came to our family for only an hour before going back to his Father in Heaven. We were so heart broken that we wasted no time bringing Kai Brian into the world. He decided to share a birthday with his Grandpa "Mike". Kai Kai is a very imaginative little boy, who absolutely loves Spiderman or any other super hero. He also loves to watch any sport that happens to be on. On New Years Day 2006 Brady Michael joined our family, and in January of this year the final addition Abigail Jane joined us. Brady is our monster and family comedian and Abby J is our other beautiful blue eyed girl that loves everyone she comes in contact with. This is our family, now a little about the purpose of our starting this blog. Two years ago Kai was diagnosed with Ullrich Congenital Muscular Dystrophy, a collagen VI disorder which is very rare. So many individuals either go misdiagnosed or not diagnosed at all. Most children with UCMD are wheelchair bound in the first decade of life. Due to the fact it is late at night I will post about the disease more in depth at a later date. One last thing before I go to bed, it is our hope that by starting this blog we can make the community more aware of this disease and may save another family the headaches and heartache we went through in receiving a diagnosis.