THE CHOSEN ONES
I had a dream the other night. It came to me so clear. I stood before the throne of God,afraid to come too near. God said to me, "I hear your prayers. There are answers you can't find. I brought you here to talk to me and help to ease your mind. "I said,"Well, yes, God, I am upset...About my special one. This punishment is awfully harsh...Whatever have I done?" God looked at me and shook his head, He said, "My Dear, you've got it wrong. I sent this special child to you because you are so strong. I searched and searched to try and find someone with a love so rare. Parents so unselfish they could give him that special care. I try to save my special gifts,like those you're speaking of,for a special kind of parents I call the 'Chosen Ones. 'Of all the ones to choose from,I know I've got it done...Parents who deserve my best,an honor you have won." -Unknown

It is way to easy to develop a "Why us?" attitude and for me to bury my head in the sand. Which to tell the truth I have wanted to do lately. When I see him taking longer to recover from one day of being a kid than he used to, I get extremely overwhelmed. Some days I want to wake up and have him be "normal", and then I find something like the above poem that slaps me in the face. Jeremy and I are so blessed to have Kai be a part of our family, and we love him so much. I can't imagine what this world would be without him, and hopefully we will have to wait a very long time before we find out. We truly believe we have been given His best.

I wear my sunglasses at night

This picture is from our latest fishing excursion up American Fork Canyon. Where Kai's daddy and great uncle built one heck of a fire to roast marshmallows. I am surprised we left without anyone getting burned in some way. Although I have yet to ask my uncle how his right ear feels. It was facing the fire for a good hour and was looking pretty red.

Kai had another game on Saturday and did really well. Unfortunately he was only in the outfield for one inning. He was just too tired. I will just have to make sure he doesn't do anything strenuous a couple of days before his next game. Below are a few of the pictures I took at his game. Yes, I actually remembered my camera. Aren't you proud? Notice the tongue, anytime he runs it is sticking out. He is just working so hard to get there as fast as he can.





We had a first with Kai yesterday, a haircut with no screaming and crying! It was a minor miracle. Below are some pictures of the thrilled little boy, not really. But at least he wasn't crying.

Lillifer

Last year Kai had to say goodbye to his little furry pal Ace. So for his birthday we took him to the Humane Society to pick out a lower maintenance buddy. We left there with the cutest black and white kitten named Lilly. She has been a wonderful addition and loves Kai very much. Since my mom has been here she has been an absolute stinker, thinking the rules don't apply. Below is a picture of her latest attempt at bending the rules. She is not supposed to be on the table, but figures since the chair is on the table it must be okay. So Jer's nickname of Lillifer definitely applies.




Kai has had a pretty good week. He is loving having his "Grandma Mike" here, and had his best t-ball game yet today. He was actually able to field a hit, and was so proud of himself. Unfortunately he was so tired the last two innings he just sat and played in the grass. I think that two games in one week is just too much for him. Thankfully he will have a week to recover before his next one.

Yes I am posting and it has only been six days. I am on a roll..NOT! I thought that since I am limited physically there would be all the time in the world to post. Well I was wrong. I may not be lifting but I am still chasing and caring for a sick little girl. Poor Abby has been miserable since last Thursday. Despite this we still ended up having a great weekend.

Unfortunately last Wednesday we had to cancel Kai's OT session because he was very tired, and we didn't want him to miss out on t-ball. Little did we know that lightning would strike a power poll and prevent us from making it to his game. Oh well, I still think it worked out for the best.

On the fourth Kai had a busy and fun day. He was able to play with his best buddy Ali and go to a movie with his Grandmama and Grandpapa. We then had a BBQ and did fireworks. For those who have never experienced fireworks with Kai, let me just say it is not a pleasant experience. He usually will curl into a ball and shut down mentally. He just can't handle the combination of lights and loud noise. We were prepared for a similar event this year with ear plugs. However, about half way through he took them out and decided he didn't need them. He spent the rest of the night talking and actually ENJOYING the fireworks. His dad and I were so happy. This was the best fourth we have had since he was a little baby.

Kai continued his streak of improvements today at aqua therapy. He actually voluntarily put his head all the way under water! Brian and I were completely shocked, it is usually a fight to even get him in the pool, let alone his head in the water. What was even better is his daddy was there with us today. We will have to make sure he is there more often if we are going to have results like this!!
A funny little story from therapy today..Kai had been blowing bubbles in the water and I guess he sounded like a pig. So he and Brian were talking about nostrils and Kai said, "If I were a pig they would be postrils not nostrils!" I guess he figures all of a pigs body parts start with the letter P. Funny boy!!

Below are a couple of pictures from the 4th of July..Sorry they didn't turn out real great, I was having problems with my camera settings.



Kai before he realized fireworks could be fun.


Kai after he decided to try and have some fun..notice the earplugs.


One unhappy little girl!


The difference a Popsicle can make.

Once again I am back to slacking. However due to the fact I can't lift anything heavier than a gallon of milk for the next six weeks, you may be hearing from me a lot more. Lucky you!

Other than his headaches Kai has been doing really well lately. We had his MRI on the 18th and found out his cyst has actually shrunk! Yeah! So I will be giving his pulmonologist a call to see if we should do his sleep study a little early this year, or go see an ENT about his adenoids. Hopefully we can get these under control so we can have our happy boy back all of the time and not just sometimes. Physical therapy went well on the 15th. He had a really good session and completely wore himself out. Not much new there, but at least he was compliant this time.

Last Wednesday Kai's T-Ball games started. Unfortunately he had to come home early due to an accident. Saturday's game went much better and he did great. I am so glad that he is actually having fun and looking forward to each game. He does have a harder time than the other kids but he can't tell, which is great! Below are a few pictures and a video my sister took. Kai has another game and OT tomorrow so I will post again soon.

My stinker!

Go figure. Kai makes it through the entire winter with only one case of strep throat. The weather is now warm and what happens he gets sick with a cough. He has felt pretty crummy this weekend and spent a lot of time laying in my bed. Today when we got home from taking Jeremy to work we had a conversation that went something like this: Kai,"Mommy I know what made me sick." Me, "Oh really what's that?" Kai, "It was the lentils in our lentil soup." Where he came up with this I am not sure. He obviously didn't like the soup we had the other night, and is looking for a way to get out of eating it in the future. What a little stinker, funny & smart, but still a stinker.

If anyone has seen "Bedtime Stories" these are what Kai is calling his Bugsy eyes.
Today we saw Dr. Larson to have Kai's eyes checked. Which is why his pupils are so dilated. Unfortunately he does not need glasses and can see just fine. No I am not crazy and hoping for my son to have problems. This just would have been the lesser of two evils. Why you may ask? Let me go back about three years.
When we were in the beginning stages of this journey with our Kai boy he had an MRI done of his brain. It showed an arachnoid cyst which we were told was no big deal unless he started having headaches down the road. Jump forward to about one month ago. Kai started complaining about headaches and has been having dreams at night that he is in pain. Since he failed his vision screening at his check up in April, I figured the eye doctor was the easiest and least expensive place to start. Well since Kai can't do anything the easy way he will have to have yet another MRI on the 18th of this month. This will be his fourth MRI and the eighth time he has been sedated in the last three years. Ahhh! Please pray this helps us get to the bottom of these headaches.

The kids and I had a good time tonight taking silly pictures, and some actually turned out pretty cute. Below are a few.