Yes I am posting and it has only been six days. I am on a roll..NOT! I thought that since I am limited physically there would be all the time in the world to post. Well I was wrong. I may not be lifting but I am still chasing and caring for a sick little girl. Poor Abby has been miserable since last Thursday. Despite this we still ended up having a great weekend.

Unfortunately last Wednesday we had to cancel Kai's OT session because he was very tired, and we didn't want him to miss out on t-ball. Little did we know that lightning would strike a power poll and prevent us from making it to his game. Oh well, I still think it worked out for the best.

On the fourth Kai had a busy and fun day. He was able to play with his best buddy Ali and go to a movie with his Grandmama and Grandpapa. We then had a BBQ and did fireworks. For those who have never experienced fireworks with Kai, let me just say it is not a pleasant experience. He usually will curl into a ball and shut down mentally. He just can't handle the combination of lights and loud noise. We were prepared for a similar event this year with ear plugs. However, about half way through he took them out and decided he didn't need them. He spent the rest of the night talking and actually ENJOYING the fireworks. His dad and I were so happy. This was the best fourth we have had since he was a little baby.

Kai continued his streak of improvements today at aqua therapy. He actually voluntarily put his head all the way under water! Brian and I were completely shocked, it is usually a fight to even get him in the pool, let alone his head in the water. What was even better is his daddy was there with us today. We will have to make sure he is there more often if we are going to have results like this!!
A funny little story from therapy today..Kai had been blowing bubbles in the water and I guess he sounded like a pig. So he and Brian were talking about nostrils and Kai said, "If I were a pig they would be postrils not nostrils!" I guess he figures all of a pigs body parts start with the letter P. Funny boy!!

Below are a couple of pictures from the 4th of July..Sorry they didn't turn out real great, I was having problems with my camera settings.



Kai before he realized fireworks could be fun.


Kai after he decided to try and have some fun..notice the earplugs.


One unhappy little girl!


The difference a Popsicle can make.

Once again I am back to slacking. However due to the fact I can't lift anything heavier than a gallon of milk for the next six weeks, you may be hearing from me a lot more. Lucky you!

Other than his headaches Kai has been doing really well lately. We had his MRI on the 18th and found out his cyst has actually shrunk! Yeah! So I will be giving his pulmonologist a call to see if we should do his sleep study a little early this year, or go see an ENT about his adenoids. Hopefully we can get these under control so we can have our happy boy back all of the time and not just sometimes. Physical therapy went well on the 15th. He had a really good session and completely wore himself out. Not much new there, but at least he was compliant this time.

Last Wednesday Kai's T-Ball games started. Unfortunately he had to come home early due to an accident. Saturday's game went much better and he did great. I am so glad that he is actually having fun and looking forward to each game. He does have a harder time than the other kids but he can't tell, which is great! Below are a few pictures and a video my sister took. Kai has another game and OT tomorrow so I will post again soon.

My stinker!

Go figure. Kai makes it through the entire winter with only one case of strep throat. The weather is now warm and what happens he gets sick with a cough. He has felt pretty crummy this weekend and spent a lot of time laying in my bed. Today when we got home from taking Jeremy to work we had a conversation that went something like this: Kai,"Mommy I know what made me sick." Me, "Oh really what's that?" Kai, "It was the lentils in our lentil soup." Where he came up with this I am not sure. He obviously didn't like the soup we had the other night, and is looking for a way to get out of eating it in the future. What a little stinker, funny & smart, but still a stinker.

If anyone has seen "Bedtime Stories" these are what Kai is calling his Bugsy eyes.
Today we saw Dr. Larson to have Kai's eyes checked. Which is why his pupils are so dilated. Unfortunately he does not need glasses and can see just fine. No I am not crazy and hoping for my son to have problems. This just would have been the lesser of two evils. Why you may ask? Let me go back about three years.
When we were in the beginning stages of this journey with our Kai boy he had an MRI done of his brain. It showed an arachnoid cyst which we were told was no big deal unless he started having headaches down the road. Jump forward to about one month ago. Kai started complaining about headaches and has been having dreams at night that he is in pain. Since he failed his vision screening at his check up in April, I figured the eye doctor was the easiest and least expensive place to start. Well since Kai can't do anything the easy way he will have to have yet another MRI on the 18th of this month. This will be his fourth MRI and the eighth time he has been sedated in the last three years. Ahhh! Please pray this helps us get to the bottom of these headaches.

The kids and I had a good time tonight taking silly pictures, and some actually turned out pretty cute. Below are a few.

Did you know?

In case you ever wondered where honeydew comes from Kai gave me a hilarious explanation. Today as we were driving in the car to pickup Ainsley from a friends, Kai ask me if I knew where honeydew melon came from, "like we had at the restaurant the other day". I was curious to hear where he thought it came from. His answer caused me to laugh so hard I missed my turn. He said, "it comes from worms. They eat the dirt and poop it out." Where he got this from I don't know, but it was too funny not to share. Now any time I eat honeydew I will think of my funny little boy!

Yes, I have been a horrible blogger lately. Reading everyone elses and failing to update my own. I promise to try and be better.
Kai has been a busy little man the past few weeks. He has had occupational & physical therapies, an aqua therapy session, preschool graduation, and just being a five year old little boy. Whew! As you can see we have not had much of an opportunity to get bored.

Unfortunately Kai's physical therapy visits continue to be less than what I would call fun. Once again I allowed him to play too hard the day before and he ended up being one cranky little boy. How do you make your five year old boy understand that if he plays like his friends today he will be miserable tomorrow? It is something we have been struggling with for a long time and are at our wits end. Hopefully as he gets older we can help him to understand cause and effect.

Occupational Therapy went really well this month. We may have finally found a way for Kai to become a little more independent in the restroom. Yea for me!! He loves Brian and has continued to make progress with his sensory issues.
We found out this week in his aqua therapy that he has a "pool problem". If you remember back to his first visit with Brian he informed us he had a "swing problem". Well I guess he has decided to add one to the list.

Kai did great at his preschool graduation and I had the sore arm to prove it. He was so cute I just couldn't put the video camera down! I was worried when he sang his solo that he would freak out, but he didn't. He sang so sweet and just melted my heart. I am so blessed to have such cute kids! Below are just a few of the many pictures that Jer took. Hope you enjoy them.



Kai singing his solo.



What a silly kid!



Kai Reading his book to everyone. So smart!

Our lives have been absolutely crazy these past two weeks. Between our trip to St. George and moving to a different house, I am BEAT! The recent changes and upheaval have been hard on the kids but especially Kai, causing him to be extra sensitive. So much so that on moving day he "ran away" to the old house when his cousin made him upset. Thank goodness he made the short trip unharmed. Needless to say we had a long talk about not leaving the house without supervision.

On the 27th I took Kai to occupational therapy. We spent the hour working out the kinks with Kai's "Bum Wiper". Which if it works will be coming to a medical supply store near you. I definitely think Brian needs to come up with a more catchy name though. All joking aside I really do hope that it works, for Kai's sake. For the time being he is okay having me help in the bathroom. However I can imagine as he gets older he will want more independence.

Kai had a great time in St. George, and he even made some progress with his sensory issues while we were there.
Exhibit A


Kai holding and not wanting to let go of Exhibit A.


Exhibit B


Kai allowing Exhibit B to crawl on him.


Those closest to Kai know what a big deal this is. He is so sensitive I can't even touch his head. So for him to allow a caterpillar to crawl on his arm is HUGE! It brought me to tears to see how excited he was on these two occasions.

Today after watching me cut Uncle Toddy's hair Kai agreed to let me buzz his head. He was in desperate need of a haircut and because we let it go too long I unfortunately cut some of his sores off. That will teach me to not cut it more often.
(For those who don't know Kai has been breaking out in gross sores since he was 10 months old. No one can figure out what they are or why he gets them. What we do know is they get worse when he has hair.) After at least fifteen minutes of torture we thought we were done. Unfortunately after a shower I found a few missed spots. When I told him there were a couple of more spots to be buzzed his response was, "NO YOU HAVE GOT TO BE KIDDING ME!" Being the mean mom I am I took the following pictures to capture this moment.