Last Friday while trying to get a very hyper Kai boy ready for school, I was informed that snakes don't wear underwear. To think for the last four years I thought he was a little boy!
The past week and a half we have been fairly busy between therapy and doctors visits. A couple of days after we had Brady to see Dr. Cornish we had to take Kai because he had a sore throat. His culture came back negative, go figure. Last Wednesday was the long awaited aqua therapy session with Brian the OT. I was a little bit nervous that Kai would absolutely refuse to get in despite my efforts to prepare him. After about twenty minutes on the stairs of the pool Kai finally decided he trusted Brian. I can't describe how happy I was to see my boy overcoming his fear and being able to move freely in the water. Sometimes it is difficult to watch him play outside with other kids because he really struggles to keep up. In the water however he can be like everyone else.
Yesterday I took him to see Kelly for PT. Kai did really well and even made some progress in the last month. Which is really exciting! The biggest problem we are having is getting him to realize his limits. He just goes and goes because he doesn't want to miss out and then he is miserable for two days after. So the days he is hurting and exhausted we are going to help him remember what he did the day before that may have caused his pain. Hopefully by doing this he can learn to recognize his limits and slow down on his own. Lets keep our fingers crossed and hope this works. I hate to see my little boy hurting.
Below are some pictures from his aqua therapy session.

Brian trying to coerce Kai to get in the pool.
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Stubborn Kai refusing to get in.


"Okay I will blow bubbles!"




Yes he is sort of jumping in.


Look at those legs! I don't think he realized Brian was swimming.


Yea I am done!

Well other than Brady being sick with strep throat this has been a relatively quiet week. Kai has occupational therapy next Wednesday at the rehab pool. That experience I am sure will provide enough comic relief to last for months. I am very interested to see how Kai does getting in the pool. Hopefully he can have some fun and not be completely traumatized.
Yesterday Kai was drawing a picture and ask me,"Isn't that unique mom?" His vocabulary continues to amaze me! Then last night I was changing Abby's diaper and he came in to give me a kiss. When he turned around Abby puckered up and wanted a kiss of her own from him. It was so sweet. She loves Kai so very much!
Below are some pictures I took today of the boys. My mom sent each of the kids a letter with some stickers. Kai and Brady went nuts with the Spiderman stickers.
Oh and notice they are also wearing their Spidey pajamas.

Well things have been pretty quiet around here. Yesterday I took Kai to occupational therapy, or as I call it my much needed dose of comic relief. Brian pretended to flush Kai down the toilette again, only this time he didn't get hurt. Instead he lost his pants. Kai then said,"That's why my name on the Wii is moonbeam!"
Brian tried to prepare Kai for our visit to the pool in a couple of weeks. They played in the water with straws and then had a water fight. Kai looked like the swamp thing in his green grown up scrubs. I am still kicking myself for not having a camera. He looked so darn cute!
Today since it was so warm we went to the park and had a picnic. We spent about five hours outside playing. Hindsight being twenty twenty this was not a good idea. Kai was in so much pain tonight I had to give him his pain medication. I think it was the combination of therapy yesterday and playing too hard today. His little joints and muscles just can't take it. Hopefully with some rest and relaxation with his daddy tomorrow he can feel better quickly.

Payback

We continued our busy few weeks with physical therapy yesterday. Kai was very excited to see Kelly and play the wii. Since Kai struggles with recognizing the signals that he is getting tired we have to ask him how he is feeling. The problem we have now discovered is as long as he is not bored he says he feels fine. Which is usually not the case. Yesterday Kelly asked Kai how his legs were feeling. Being the comedian he is Kai stuck his ear to his thigh like he was listening to what it had to say, STINKER! Then when we were leaving Brian came up to say hi and Kai smacked him across the face. I was so embarrassed! Brian said it was payback for last week and he deserved it. I still had a talk with Kai on the way to the car about how it is not okay to hit, even if he was just playing. Hopefully next Mondays OT session goes better than last week. Especially since they are getting Kai in the pool, Yikes!


Just a side note we are planning on having our annual "Caring for Kai Kai" fundraiser either the 9th or 16th of May. More information will be coming soon.

Trifecta

Occupational therapy on Wednesday was very eventful. Brian had Kai doing things I never thought he would do, like falling into pillows or crawling through a tunnel while it was moving. During all of this excitement my poor boy was injured three times. The first one we think happened from Brian's watch while they were wrestling. It is a good size gouge in his head. Then Brian was showing Kai something with a basketball and instead of it going where he wanted it to it came off Kai's head, right on injury number one. Poor kid was pretty mad for a second. Finally at the end of therapy in preparation for working on his wiping himself, Brian was pretending to flush Kai down the toilette. He did this by having Kai in his lap and letting him fall between his legs. Instead of Kai coming down on the soft mat he came down on the floor which is concrete, right on his spine. He was the most upset about this, because I'm sure it hurt the most. So my sweet boy has two bruises to go with the sore on his head. Despite all of this he did have a good time.
This week he has had a hard time recovering from therapy. He has been so cranky, tired, and just not himself. I am going to ask his physical therapist to take it easy on him next Monday. I think this three times a month might do him and me in.

"Holes in the floor of Heaven"

Yesterday Kai and I were watching a show where two people were getting married. He ask me if he was a baby when his dad and I got married. I told him no that he wasn't born yet, but that he was watching from heaven. He said,"Oh yeah, cause there are holes in heaven that I could look through." Due to his extremely sensitive nature I could not bust up laughing, but believe me I wanted to. There are days like yesterday when I don't know how I'm going to make it through, and then one of my kids does something like that. Thank goodness for my funny kids!!
Not too much has been happening. This Wednesday Kai has his first actual OT appointment. The last one was just his evaluation. Then a couple days later he has PT and that same week we register him for Kindergarten. So I should be posting more in the next couple of weeks. I actually am glad not much has been going on. Last year at this time we were on our fifth round of respiratory gunk and he ended up with pneumonia. So hopefully we can keep his healthy trend going!!

Well it has been a very eventful week. Brady and Abigail got sick with respiratory gunk last week and are still fighting it. Abby was hit especially hard and had to go to the doctor on Monday. She was starting to get blue around her lips which freaked me out! So we have her on breathing treatments three times a day for a week. Thankfully I hadn't given back the nebulizer I borrowed. Thanks John and Mel. I promise I will return it soon. We are hoping beyond hope that Kai remains healthy. So far so good (knock on wood).
Today Kai had his evaluation for occupational therapy. I really like Brian the therapist, and I think he will be a good advocate for Kai. When we got there Brian had Kai get in big tire swing that had a bottom. For those who know Kai he hates movement, especially swinging. So after trying to get him to do certain things Kai told us that he has a "swing problem". I couldn't stop laughing. It was definitely an entertaining two hours. So we will now be going to rehab three times a month, twice for OT and once for PT.
One of our main concerns for Kai right now is Kindergarten. We are going to try and get him an IEP, which would ease a lot of my stress. He just continues to have no stamina and I worry about his sensory issues as well. If he does not qualify for some reason we may have to look at home school for him. Which I really don't want to have to do. I really think he needs the social interaction. Hopefully it won't come to that.
We had a couple of funny moments with Brady today. We were coming home on the back roads where all the horses are, and he said,"Look at the elephants mom!" If you have heard the bobcat story you will think like mother like son. In case you haven't heard it yet, too bad you have to wait till my funeral.
Then we were listening to "Life is a Highway" this morning. This is Brady's version of the song, "Life is a highway, someones in my way, all night long." Jer and I thought this was so funny and true. Brady is always running someone over.